Hashimoto’s Hypothyroidism and me…….
Here, 121 Dietitian Founder and Lead Dietitian, Gillian Killiner, shares how she was diagnosed with Hashimoto’s Hypothyroidism, which through research, dietary and lifestyle changes, supplements and exercise, she has reversed. Read on to find out how she did it and how she can help you too!
Invincible? Me?
In my youth, I thought I was invincible. I tried to be everything to everyone, I empathised and sympathized with others on their poor health or misfortunes and tried to rebuild or improve them, but never in a million years thought that ill health could happen to me. My lack of truly listening to my body over many years caught me out, and with a family history of auto-immune disorders I now regret this stubborn inner me. However, as I live with a chronic auto-immune condition I feel that if anything positive has come out of it, is that it has really allowed me to understand and help my patients at a level deeper than ever imaginable before.
Hashimoto’s thyroiditis
For those unfamiliar with this condition, is in which the body’s own immune cells attack and destroy the thyroid gland. There can be up to 300 different symptoms and so there can be many of these symptoms that cross over into other illnesses. It can be slow progressing for some and so blood tests may not detect it in the early stages, making lives unpleasant with symptoms and no answers.
Hypothyroidism
Hypothyroidism is the most common outcome for a Hashimoto’s sufferer and medication is used to help treat this condition, end of story. That is what I was taught when learning about the thyroid at uni and during my hospital career. Take a tablet and all will be fine, next….
My story is classical: I trace my trigger to having quinsy in my 3rd pregnancy – the infection was so severe I was in the hospital for 3 days on an IV drip. They lanced my tonsils at the bedside and let all the bacteria drain into my gut. From this, I slowly recovered and after having baby number 3 many things occurred that put additional pressure on our lives. I felt rubbish, but put that down to long hours running my new business, caring for three small kids, getting older and significant involvement weekly in caring for my disabled mother who was a 3-hour drive away.
My husband, a fabulous man, was hardly around with his job. I was a “no-time-for-me person” to whom I used to say if I met someone like this: “If you don’t look after your health you will have “plenty of time in the future”, as you won’t be able to work!” A total hypocrite I know now. I just did not see it for myself or maybe I chose to ignore it. I was invincible! One day it all changed when I uncharacteristically booked to get my Vitamin D checked. This I know was mainly due to my dietetic curiosity with work spurred on with the media hype at the time.
I remember when my blood panel came back I was shocked and in disbelief but if honest, relieved. I was not surprised that something showed up and that all my symptoms that I tried to ignore or had secretly stressed about were valid. In addition to Hypothyroidism and Hashimoto’s diagnosis, I had a very low Vitamin D level and suboptimal levels of B12. My diagnosis was in Dec 2012 and I thought that was it, all fixed. I was commenced on Levothyroxine and I slowly built up the dose as guided by my GP and I sat back and waited to get better.
Did I feel better? Psychologically maybe a little as I started to take more interest in myself and others around me had to also consider my health. However, this feeling did not last long; 4 weeks later and I was worse and so the GP increased the tablets and so the story went on until my bloods were in NORMAL range but I was feeling worse than ever.
My GP made an urgent appointment for me with an Endocrinologist who assessed me and said “go take a holiday”. OMG I didn’t see that coming. I was hoping to be taken seriously but clearly, I was not ill on the small panel of thyroid blood tests taken and so it had to be in my head….any of you who have been there will know the score.
From that moment onwards, as best I could, I did my research. I was so unwell I did not see how I could make it to my next birthday: I was 1 month away.
Some of my major symptoms included: severe headache like a vice, walking in concrete, mixing up words, brain fog, exhaustion, not able to get out of the car to lift my kids or shop, back pain, chest pain, lots of sighing, yawning, un-refreshed sleep, brittle nails and hair, skin on chin irritated, sensitive teeth and gums, low moods, insomnia, tearful, constipation, freezing cold, heart palpitations….my adrenal glands were struggling too.
I bought a medical thyroid book which was a great starting point and I commenced the recommendations. I know you would think that as a Dietitian I would be an expert in nutrition, which I am! But the subject of auto-immune and supplements was lacking in my knowledge and so all news was new and I ate it all up. (With these new skills I now successfully treat patients today).
Anyway; I took a summer holiday with my family but sadly as a shadow of my former self in vitality, stamina, and energy. Sitting at 40c I was cold and wrapped up, but the headaches were gone and that was one step in the right direction.
I came home from my holiday and began to fix myself further. I joined the Health Unlocked forum, which again has been instrumental in my recovery. I requested further blood tests and from this, I commenced a medication which had a combination of T4 (levothyroxine) and active T3. This along with the daily regimen of supplements made a noticeable difference and some of the significant symptoms began to settle.
At the same time I made a difficult but important decision that I will tell you more about in the next blog: part 2.
Hashimoto’s And Me – Part 2…
Well, sorry for the very long pause. Things always happen when you least expect them. My mother who is disabled with MS was in a car accident and badly broke her leg in June, which meant all my extra time outside of work and family was directed at her care and attention and to keep her mentally strong. It is an ongoing slow process but she is getting there.
For me I could not imagine how I would be coping if I had not been able to recover my health after my Hashimoto’s diagnosis.
To get to the level I am at now did take a big decision. Pre 2010, I was not an ‘elimination of foods’ type of Dietitian! My motto was to increase food choice and enhance variety in all my patients’ diets (obviously not those with allergies and specific ill health but the people who required help with healthy eating). I had seen firsthand how many people with unnecessary food restrictions had become more unwell.
My big leap was that I removed gluten from my diet, and I can only say I am happy I did. My symptoms like constipation and skin irritation did not change greatly but I knew it was scientifically worth the change – even if removal was to prove it was the wrong path, I could save my patients from possibly making the decision.
It is 2 years since I made the change and I am continuing with this. I feel the scientific evidence is there and unfolding at present there is not enough research written up and so I will continue this route while I await further results to materialise.
Hashimoto’s And Me – Part 3…
Another six months on and I am delighted to let you all know that I have reversed my Hashimoto’s. I am more than delighted! My antibodies are 12 IU/mL well below the 35 IU/mL they were previously over 600IU/mL, and it has been due to diet, supplements, the correct exercise and lifestyle.
My current lifestyle is still busy but I now try my best to keep on top of my workload and general daily pressure.
I continued with my gluten-free diet, avoiding processed gluten-free products 99% of the time also.
From an individual who naively followed the principles of a low-fat diet in her twenties and scorned anyone who took supplements, always believing that your food gave you all the nutrients if you ate healthily, I have come a long way – unfortunately the hard way. And if you read my previous blogs you will know the changes I have made have been many. I now eat increased healthy fat choices and upped my vegetable intake further than I thought possible and I’m loving the changes.
I see patients at my clinic daily who have chronic inflammation, PCOS, chronic fatigue syndrome, hypothyroidism, diabetes, obesity, high blood pressure and IBS, who all benefit from my new and ever-expanding nutritional and medical research and knowledge.
My message to you all is not to suffer in silence. You may have been through many tests that show nothing is wrong but don’t give up. You need a full MOT to be able to get to the root cause. Therefore I urge you to seek advice.
On our various dietary programmes, we teach you the best way to look after and optimise your health. The key to success is learning to enjoy eating a variety of foods in the correct amounts, that are best for you based on your health concerns.
I am always happy to advise you at any stage of your health journey so do please get in touch if you need direction or further help.
Gillian x
Kristen McBurney2023-03-21I cannot recommend Gillian enough. I got in touch after struggling to lose weight due to PCOS and suffering from IBS. Thanks to Gillian, my IBS symptoms have massively reduced, and I have been able to lose a significant amount of weight. Her warmth makes you feel instantly comfortable and at ease. Gillian’s help and expertise is second to none, and she is always on hand to answer any questions. I am throughly enjoying the plan Gillian created for me and have found it easy to integrate into my everyday life. I am so grateful for the positive impact her plan has had on me.Hannah Crothers2023-02-10Gillian is the greatest. She is compassionate and professional, really helped me to understand my body’s function and how to best support it. Her advice has changed my life.Jay Rafferty2023-02-09I would highly recommend Gillian. Her advice and guidance has been a game changer for me. With so much conflicting and confusing advice on healthy eating, using a professional nutritionalist is a must.Emma Lavery2022-12-29I could not recommend Gillian enough over the last 3 months - she has turned my life around! I was referred to Gillian by my gastro consultant due to suffering from ibs, gastritis and hormonal issues for nearly 10 years. Gillian was very understanding and approachable throughout my time spent with her. Gillian discussed my health, lifestyle and eating habits thoroughly. She advised an individualised blood check for underlying issues, educated me on supplements and provided numerous information to help aid my recovery. The low foodmap programme I have been following is achievable and can be adapted to anyones lifestyle. As I am a vegetarian I thought this process may be difficult however Gillian reassured me that this would be no issue. She supplied personalised shopping lists, recipes and alternative foods to help heal my gut and overall health. Continual support from Gillian was on hand via email when required. I seen improvements in my symptoms within only weeks of starting the programme and was overwhelmed by the success due to suffering for years! I have been spreading the word about Gillian's brilliant work and will continue to do so! Thank you again for all your help!mick lorkins2022-12-18Strongly recommended. There are not many professionals that can totally change you life for the better but this one one if you follow the advice given.Bobby D2022-09-07For 30 years I have suffered with IBS D and have been unable to find the right specific help. I was introduced to 121 Dietician about 6 weeks ago and like all other services out there I was sceptical. First up was a consultation online which was great considering the many issues I was having going to places. Gillian listened very attentively and understood the many problems I was having. Gillian decided to introduce me to the Low FODMAP diet. Starting out she provided everything (information, shopping lists, recipes etc) to get started. Through the course of the first 6 weeks Gillian was available to answer any questions or concerns. Following the first 6 weeks I'm very happy to say that all the many problems associated with IBS have gone and I'm starting to live a normal life without any stage fright when out and about. The next 8 weeks will be the reintroduction stage but based on the knowledge from Gillian in the initial stage I'm very confident that at the end I will have full understanding of all my triggers. I can't recommend this service enough as most importantly after 30 years of severe symptoms I once again feel healthy and happy. This is a must if you suffer continually from this horrendous condition. I would be confident that this will help anyone who has IBS. For me this was the best money ever spent and I can't thank Gillian enough for the difference she has made. Roy DornanJack Kennedy2022-09-04Helped solve stomach issues, had previous been to several people but this was the first dietary intervention that workedLaura Campbell2022-04-29After over 10 years of eating quite poorly, Gillian has completely changed my approach to food. After a consultation and review of my diet, she provided me with a list of easy and quick recipes that are packed full of nutrition. She takes into consideration your lifestyle as well which I really appreciated too. I now have much more energy and actually enjoy preparing meals now, something I never did before. I honestly cannot recommend her enough. Thankyou! 🙂Chris Arnold2022-04-24The overall experience was a very positive one. Gillian certainly had the expertise and people skills to help evaluate and treat my daughters gut issues. The progress was quite instantaneous and over time has made a huge difference to her everyday life. Thanks to Gillian for her work which came at the end of many doctor consultations. In hindsight Gillian should have been the first port of call.Amelia Tyler2022-03-30Gillian is great and her program was just perfect. All the meals were delicious and I always felt satisfied which made it very easy to follow. I would highly recommend, especially the 121 sports program.Google rating score: 4.9 of 5, based on 46 reviews